Health Status Update

It’s been awhile since I last made a post about my Hiking Fundraiser, my health and my restrictions with this incurable lung disease called Pulmonary Fibrosis.  I’ve had to cancel my last 2 mountain hikes due to my oxygen saturation getting into the low 80’s% and I can’t even do a 22 km from St. Albert to Morinville, AB on relatively flat ground, for my fundraiser as my Doctor doesn’t want my oxygen to get below 90%.

My lung function is slowly deteriorating, WHY, it maybe the fact I haven’t been keeping up with my fitness and aerobics, or I aggravated the autoimmune disease, Sjogren’s Syndrome, that caused my lungs to become scared in the first place, from the training and my first hike, or the lung infection I had this summer caused the Sjogren’s Syndrome to flare up, who knows. It has changed my lifestyle with things I never thought about before I was diagnosed or since I was diagnosed as I don’t feel any different.

I’m also low in iron which I thought if I improve that would my oxygen saturation get better. Unfortunately this is not correct because your blood cells, even if damaged, will still show the same oxygen saturation levels if you are using an oximeter.

The following is a record of 2 major items from my Lung Function Tests since I was diagnosed with Pulmonary Fibrosis. As you can see I was consistent in my tests until this October when I showed a significant reduction. I’m scheduled for a CT Scan of my lungs, another Lung Function Test, and a visit with the Rheumatoid Specialists to see if the Sjogren’s is acting up.

Date
Jul
22
2013
Feb
12
2014
Jul
8
2014
Nov
19
2014
May
29
2015
Dec
10
2015
May
26
2016
Dec
5
2016
Jun
12
2017
Oct
18
2017
May
4
2018
Oct
29
2018
Forced Vital Capacity
How much air you can exhale with force after you inhale as deeply as possible.
Reference to population
L
4.42
4.42
4.34
4.40
4.40
4.38
4.38
4.36
4.36
4.34
4.34
4.26
Actual Test
L
4.28
4.61
4.22
4.28
4.32
4.32
4.40
4.42
4.28
4.46
4.15
3.70
% of Ref
%
97%
104%
97%
97%
98%
99%
100%
101%
98%
103%
96%
87%
 Total Lung Capacity
The amount of air in your lungs after you inhale as deeply as possible.
Reference to population
L
6.17
6.17
6.08
6.18
6.18
6.16
6.16
6.15
6.15
6.13
6.13
6.95
Actual Test
L
6.03
6.12
5.79
5.63
5.69
5.72
5.73
5.88
5.91
6.04
5.6
5.34
% of Ref
%
98%
99%
95%
91%
92%
93%
93%
96%
96%
99%
91%
77%

I still feel fine when my oxygen does get into the 80’s and to me I don’t feel any different than when I played hockey, walked playing golfing, jogging, or downhill skiing where I might be breathing a little faster.

But the good news is I’m still not on oxygen or drugs.

 

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